Showing posts with label premature. Show all posts
Showing posts with label premature. Show all posts

Monday, May 17, 2010

Birthdays and Miracles

A birthday is a joyous occasion filled with balloons, presents, and birthday cakes. It is a celebration of life and should not to be taken lightly. In fact, for a child like mine each birthday is a miracle.

At 2:19 P.M. on May 18th Aidan Joseph Yap will celebrate his 7th birthday. This is a major milestone for a child, delivered by emergency c-section, 15 weeks early, and weighing a mere 1 lb 11 ounces. A child whose heart stopped 3 times, had a brain hemorrhage, and was on oxygen for his first year of life. One that has overcome 17 surgeries for his brain, eyes, throat, heart, stomach, intestines, hips, and legs.

This year his birthday also marks 4 seizure-free months. I am thankful every day that I can say that because we have run the gamut of weekly seizures, bi-weekly seizures, and monthly seizures. At one point his neurologist said that was probably the best outcome possible. Then when he had an allergic reaction and we were forced to take him off one of his medications, the seizures stopped! I am going to say, "at least for now" because God knows I don't take these 4 months for granted.

In closing, I want to say happy birthday Aidan. I love you so much sometimes it physically hurts, I am a better person for having you and knowing you, and I hope this birthday brings you another year of health and happiness.

Friday, March 19, 2010

I Believe

When I started to write this essay, my first instinct was to write, “I believe all things happen for a reason.” Once I started writing about my son I realized my belief is in the power of love. The love I have for my son and for the love God has for all of us.

My son was born prematurely. He weighed only 1 pound and 11 ounces. For so much longer, he should have been warm and safe inside my body. I suffered a placenta abruption, which means his placenta started separating from me and I hemorrhaged. He was so tiny and frail when delivered by emergency cesarean section. The hospital didn’t have the resources to care for a critical infant, so within two hours of the delivery he was transported to one of the largest Neonatal Intensive Care Units in California. He stayed there for 143 days. During that time my faith was tested to say the least. At the time I couldn’t understand how God could allow this child to suffer. His heart and lungs failed him three times in his first two days of life. He kept fighting, and God spared him. That is when I knew, he would do something great in this world. Each time the doctors and nurses brought him back to life. I remember asking my husband, “What are we going to do?” He said, “If he wants to fight, we fight.” Ever since that day, we live by that mantra.

Before him, I was a type “A” personality. I could be impatient and intolerant. Now my life is made up of “wait and see.” With every milestone he achieves, great or small, I couldn’t be prouder if he won an Olympic medal. I took things for granted, not anymore. These are the lessons I have learned from my son. God blessed me with this child to teach me these lessons. This month marks his 5th birthday. He has been through 14 surgeries and lives with a list of diagnoses too long to share. But overall, I can say my child is happy. When he looks at me, I know he is saying, “I will be OK.” He can not tell me in words, because he does not speak. He can not run to me and hug me, because he can not walk, but when he leans towards me, I know he is saying, “I love you too.” In my heart, I know that my son will continue to develop even though his therapists are satisfied if he just “maintains.” If I love him enough he will do it. I believe in the power of love.